External resources

Alzheimer’s Foundation of America: www.alzfdn.org

Alzheimer’s Association: www.alz.org

Alzheimer’s Disease Research Center–University of Wisconsin–Madison: https://www.adrc.wisc.edu/about

Dementia UK: www.nhs.uk

Pathways to Well-Being With Dementia: A Manual of Help, Hope and Inspiration. Dementia Action Alliance: www.daanow.org

Alzheimer Society of Canada: www.alzheimer.ca

Alzheimer’s Society UK, Living with Dementia My Life, My Goals: www.alzheimers.org.uk/sites/default/files/2021-09/my-life-my-goals-workbook.pdf

Dementia Action Alliance: www.daanow.org

Dementia Toolkit, Guide to the Living with Dementia Toolkit: www.dfamerica.org/toolkit-getting-started

Dementia Understand Together, At Home Activities: A selection off meaningful activities for people living with dementia and care partners:  www.hse.ie/eng/services/news/newsfeatures/covid19-updates/partner-resources/at-home-activities-for-people-with-dementia-families-and-carers.pdf

Lewy Body Dementia Association, Comprehensive LBD Symptom Checklist: www.bfda.org

National Institute on Aging, Getting Your Affairs in Order: Advance Care Planning: www.hia.nih.gov 

National Institute on Aging, Legal and Financial Planning for People With Alzheimer’s Disease Fact Sheet: www.cooleydickinson.org 

The Conversation Project, Your Conversation Starter Kit. This guide helps care partners understand what matters to someone living with dementia and how to help them have a say in their healthcare:  www.theconversationproject.org 

The Hartford Center for Mature Market Excellence, At the Crossroads Family Conversations about Azheimer’s Disease, Dementia and Driving World Health Organization, Risk Reduction of Cognitive Decline and Dementia: https://apps.who.int/iris/bitstream/handle/10665/312180/

Suffering: Betterness or Bitterness? The Choice is Yours. By Deacon Bruce Dahl, M.D.

Dancing With Elephants, Mindfulness Training for Those Living With Dementia, Chronic Illness, or an Aging Brain, by Jarem Sawatsky

The Caregiver’s Guide to Dementia, Practical Advice for Caring for Yourself and Your Loved One by Gail Weatherill, RN, CAEd

The Gift of Years, Growing Older Gracefully by Joan Chittister

“Creating Moments of Joy” – Jolene Brackey

“What The Hell Happened To My Brain? Living Beyond Dementia” – Kate Swaffer 

“The End of Alzheimer’s, The First Program to Prevent and Reverse Cognitive Decline” – Dale Bredesen, MD

“No Act of Love Is Ever Wasted: The Spirituality of Caring for Persons With Dementia”- Jane Marie Thibault, PhD & Richard L. Morgan, PhD

“My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver” by Martin J. Schreiber

“Dancing with Dementia: My Story of Living Positively with Dementia” by Christine Bryden

“Dementia Beyond Disease: Enhancing Well-Being” by G. Allen Power, M.D.

“The Inheritance: A Family on the Front Lines of the Battle Against Alzheimer’s Disease”- Niki Kapsambelis

“Defeating Dementia: My Story of Recovery from Alzheimer’s” -Francis C. McNear 

“Love, Loss, and Laughter, Seeing Alzheimer’s Differently” – Cathy Greenblat, PhD 

“A Pocket Guide for the Alzheimer’s Caregiver” – Daniel Potts, MD, Ellen Woodward Potts 

“Second Forgetting, Remembering the Power of the Gospel During Alzheimer’s Diseae” – Dr. Benjamin Mast

“My Journey Into Alzheimer’s Disease, Helpful Insights for Family and Friends” A true story by Robert Davis 

“Rethinking Alzheimer’s Care” – Sam Fazio, Dorothy Seman, Jane Stansell 

“Grandpa and Lucy, A Story About Love and Dementia” (children’s book) — Edie Weinstein 

“Keeping Hope Alive as Memories Fade: The 5 Love Languages and the Alzheimer’s Journey” – Deborah Barr, MA; Edward G. Shaw, MD; Gary Chapman, PhD

“The Best Friends Approach to Alzheimer’s Care” and “The Best Friends Book of Alzheimer’s Activities” – Virginia Bell, David Troxel, Tonya Cox, Robin Hamon 

“The Four Things That Matter Most, A Book About Living” – Ira Byock, MD

“21 Days to Resilience” How to Transcend the Daily Grind, Deal with the Tough Stuff, and Discover Your Strongest Self”- Dr Zelana Montminy

“Being Mortal, Medicine and What Matters in the End” – Atul Gawande

“Alzheimer’s from the Inside Out” – Richard Taylor PhD 

“Love, Life, Loss – A Roller Coaster of Poetry” Volume 2: Days with Dementia” – Kate Swaffer

“Dementia Beyond Drugs – Changing The Culture of Care” – G. Allen Power, M.D. Foreword by Kate Swaffer and William H. Thomas

“Diagnosed with Alzheimers or Other Dementia: What’s Next?” – Kate Swaffer and Lee-Fay Low

“The Gift of Years, Growing Older Gracefully” – Joan Chittister

The best products to keep loved ones safe, active, and loved: Alzstore.com

Simple essential oils and aromatherapy: www.quella.store